Whitepapers
Research and argument from the Aquila Health team on health data, the value it carries, and who gets to hold it.
From Cells to Code
The Legacy of Henrietta Lacks and the Unjust Enrichment of the Health Data Economy
Person-derived health data now funds hospitals, insurers, and technology firms, while the person it came from has no say in its commercial use and no share of what it earns. This paper makes the case that unjust enrichment, not ownership, is the more useful place to start.
35 pages · Aquila Health PBC · September 2026